Support sessions for caregivers of individuals with Sanfilippo Syndrome (MPS III) will take place on Tuesday, August 4 and Tuesday, August 18.
With a nod to our 45 year history, the 2019 Annual Report outlines the amazing work of our committees, and highlights key efforts in fundraising, research, and support over the past year.
This is a second round of funding for the 2020 Society Research Program.
Congratulations to all of this year's recipients! We're proud to share their stories and support their journeys.
This beautiful quilt represents over 20 years of love and commitment to an organization we believe really helps families through the entire MPS journey.
The National MPS Society is pleased to announce the hiring of its inaugural Chief Scientific Officer (CSO), N. Matthew Ellinwood, D.V.M. Ph.D.
For years, families have recognized sleeping disorders are manifestations of Mucolipidosis (ML) II, II/III and III a/b. Still, there have been limited studies conducted and limited objective data. A recent longitudinal study out of Paris, France has now provided new insights around sleep-disordered breathing. Patients of the Lysosomal Disease Center of Neckar Hospital were studied … Continued
Current Study demonstrates potential to provide treatment to both prevent and reverse blindness for individuals with MPS I
DOUBLE your donation for research! All donations up to $30K will be matched dollar for dollar for our June 13th virtual event.
Each year we remember individuals with MPS and ML who have passed away but who remain in our thoughts and hearts. We invite you to join us in reading about and remembering our cherished friends and family.