MPS Awareness Day is May 15

Each year we celebrate MPS Awareness Day on May 15. On that day we acknowledge and thank those that work tirelessly to research treatments and cures, but also to recognize the families and individuals diagnosed with MPS and ML and the challenges they constantly overcome. 

Applications for 2019 Research Grants Program are now Being Accepted

The National MPS Society is proud to announce that the Research Grant Program for 2019 is officially open. In 2019 the Society will continue funding research with the goal of finding treatments and cures for MPS and ML. The Letter of Intent application is now available for innovative research projects that involve clinical research, basic research, and … Continued

2019 Events

We have events on each coast and in between to raise money to support families diagnosed with MPS and ML, please join us at a few!


Our members came out strong to show support for #RareDiseaseDay and honor those that came before them and pave the way for those just starting their journey.

2019 Courage Awards

Did someone you love get a 2019 Courage Award? Do you want them to be in the full gallery of all award recipients, then send an email with a picture to and he’ll update the gallery. To see who is in there now, click here!

Newborn Screening Biomarkers Study

DEADLINE EXTENDED! IRB approval now authorized through August 2020. This study is available to patients born in one of the following states: California, Indiana, Michigan, Minnesota, New Jersey, New York, North Carolina, Washington The National MPS Society is working with researchers at the University of Washington to improve the precision in newborn screening for MPS … Continued

Angels Among Us: Remembering Our Loved Ones

Each year we remember individuals with MPS and ML who have passed away but who remain in our thoughts and hearts. We invite you to join us in reading about and remembering our cherished friends and family.