News

Angels Among Us

Each year we remember those that we have lost. Please take a moment to honor the Angels Among Us. We encourage families to create their own remembrance pages so that together we can all honor and remember our special angels. 

Annual Report for 2017

Each year the National MPS Society compiles an annual report. This report outlines key fundraising efforts and the work of our amazing committees. It also details the grants we have subsidized and invested, as well as our financials. We invite anyone interested to review the report to get a better look at the inner workings of … Continued

Dare to be Different

Do you have a beach house, extra airline miles, or a specialty item that you would be willing to donate to the National MPS Society? Your unique donation will help our Live & Silent Auctions! Celebrate our 45th Anniversary and consider giving to the Dare to be Different Gala. For additional details or questions, email … Continued

2018 Annual Fund – Hollands’ Hope

Please join us in supporting the National MPS Society’s 2018 Annual Fund Campaign. Learn why the Society is critical to our family and the MPS and ML community nationwide. Hollands’ Hope MPS I invaded our lives in 1994 with the diagnosis of our three precious children at the ages of four, three, and one. It … Continued

San Diego Superhero 5K & 1 Mile Memorial Walk

Join us in celebrating our super heroes as we conclude the 15th International Symposium on MPS and Related Diseases in San Diego. On Sunday, Aug. 5, the Society will host a chip-timed 5K run and one-mile memorial walk at 8:15 a.m. PDT. The race will take place at the lovely Spanish Landing Park, which is … Continued

Research Update Regarding Glycosylations of Simple Acceptors

Dr. Vito Ferro of The University of Queensland in Brisbane, Australia received a grant for his work in the field of MPS during the years of 2013-2015.  We are proud to share this publication, which concerns the chemistry of iduronic acid, a key component of GAGs.  It came about as part of a project funded … Continued

15th International Symposium on MPS and Related Diseases Scientific Speakers Announced

On behalf of the 15th International Symposium on MPS and Related Diseases, the Scientific Program Delegates announce the Scientific Program Oral Presenters this August 2 – 4, 2018 in San Diego, California. Selections were led by our Program Delegates:   Patricia Dickson, M.D. Harbor UCLA Medical Center Lorne Clarke, M.D. University of British Columbia, Canada Brian Bigger, Ph.D. University of Manchester, United Kingdom … Continued

Courage- May 2018 Edition

  The May edition of our Courage newsletter is now available for viewing.  Read it here!

MPS Awareness Day

The international community celebrates MPS Awareness Day each year on May 15.   In an effort to spread awareness about MPS during the month of May, we’ve created this calendar with activities on each day that help promote MPS awareness.  We will be posting reminders on Facebook and Twitter, so be sure to follow us and … Continued