2019 Annual Report

With a nod to our 45 year history, the 2019 Annual Report outlines the amazing work of our committees, and highlights key efforts in fundraising, research, and support over the past year.

A Quilt of Gratitude & Remembrance

This beautiful quilt represents over 20 years of love and commitment to an organization we believe really helps families through the entire MPS journey.

Mucolipidosis II, II/III and III a/b linked with sleep-disordered breathing

For years, families have recognized sleeping disorders are manifestations of Mucolipidosis (ML) II, II/III and III a/b. Still, there have been limited studies conducted and limited objective data. A recent longitudinal study out of Paris, France has now provided new insights around sleep-disordered breathing. Patients of the Lysosomal Disease Center of Neckar Hospital were studied … Continued

Million Dollar Bike Ride

DOUBLE your donation for research! All donations up to $30K will be matched dollar for dollar for our June 13th virtual event.

Angels Among Us: Remembering Our Loved Ones

Each year we remember individuals with MPS and ML who have passed away but who remain in our thoughts and hearts. We invite you to join us in reading about and remembering our cherished friends and family.