News

2019 Events

We have events on each coast and in between to raise money to support families diagnosed with MPS and ML, please join us at a few!

#RareDiseaseDay

Our members came out strong to show support for #RareDiseaseDay and honor those that came before them and pave the way for those just starting their journey.

2019 Courage Awards

Did someone you love get a 2019 Courage Award? Do you want them to be in the full gallery of all award recipients, then send an email with a picture to jacob@mpssociety.org and he’ll update the gallery. To see who is in there now, click here!

Newborn Screening Biomarkers Study

DEADLINE EXTENDED! This study is available to patients born in one of the following states: California, Indiana, Michigan, Minnesota, New Jersey, New York, North Carolina, Washington The National MPS Society is working with researchers at the University of Washington to improve the precision in newborn screening for MPS syndromes. The researchers would like to obtain … Continued

Angels Among Us: Remembering Our Loved Ones

Each year we remember individuals with MPS and ML who have passed away but who remain in our thoughts and hearts. We invite you to join us in reading about and remembering our cherished friends and family. 

The printed Courage magazine is back!

Welcome to the return of printed Courage–this issue is the first to be delivered since Spring of 2016. Looking back, the very first printed edition of Courage was sent in 1985, and members received a newsletter four times a year. Two years ago, a strategic decision was made to transition to an emailed electronic version. … Continued

Q4 and Annual Fund Donors

Annual Fund Campaign Raises $203,362 2018 HAS BEEN A TERRIFIC YEAR FOR THE 17TH ANNUAL FUND! We reached another new level of giving by of cherished donors to the Society who believe in our mission. This critical funding stream keeps the organization strong. Through your tremendous support you have shown the Society you understand the … Continued