Harboring Hope

We must reach to find answers for those without treatment options and continue to advocate for the next generations. Take a moment to watch Harboring Hope, exploring areas of unmet need.

Angels Among Us: Remembering Our Loved Ones

Each year we remember individuals with MPS or ML who have passed away but who remain in our thoughts and hearts. We invite you to join us in reading about and remembering our cherished friends and family. 

National MPS Society’s Maritime Gala

You are invited to attend the National MPS Society's Maritime Gala in Tiburon, California on May 13, 2023 to celebrate International MPS Awareness Day and raise funds for research and family support.

MPS Society 5K Run in Napa, CA

Join us at Lake Crabtree County Park on March 25, 2023 for the 13th Raleigh Run for Rare. This event will feature a 5K run, 1 mile walk, and post-run family picnic. On April 30th, in Napa, CA, we will host the MPS Napa Race for a Cure.

Annual Fund 2022

We ask you to join us in making a contribution to strengthen our work and impact the future for those with MPS and ML. Please take a moment to listen to the message below from our Annual Fund Chair and the Director of Family Support & Communication, Leslie Urdaneta.

Big Bake for MPS and ML

Big Bake for MPS and ML now through November 13th! Join us whether you are a professional baker or a professional faker, we need you! There are many ways to … Continued

Newborn Screening Article Release

Matthew Ellinwood, Chief Scientific Officer, authored a new publication published in the American Journal of Medical Genetics outlining newborn screening and suggested improvements based on the National MPS Society’s work … Continued

2021 Annual Report

Our 2021 Annual Report features highlights, financial reports, and donor acknowledgments.