National MPS Society AdvocacyChristine Tippett, Chair, Advocacy CommitteeNational MPS Society Board of Directors The National MPS Society’s Advocacy Committee has monthly calls. There are over 25 members and they work … Continued

Accelerating a Treatment for GNTAB-Related Disorders Richard Steet, Ph.D.Jennifer Klein, MS One year since the formation of the MCRN, the network continues to meet monthly, with the primary function to coordinate … Continued

Orthopedic Management of the MucopolysaccharidosesKlane White, MD Dr. Klane White provides a visual overview of pediatric orthopedics and the prevention and treatment of musculoskeletal disorders in children with MPS. Dysostosis … Continued

Natural History of MPS Disorders – What Do We Know About Cognition Over Time?Elsa Shapiro, PhD, A.B.P.P., LP Dr. Elsa Shapiro delivers an overview of the effects of MPS on … Continued

For years, families have recognized sleeping disorders are manifestations of Mucolipidosis (ML) II, II/III and III a/b. Still, there have been limited studies conducted and limited objective data. A recent … Continued