The Storytelling Series: Telling Your Story with Purpose
Join us via Zoom for a free, four-part webinar series created to support individuals and families in the rare disease community as they explore the power of storytelling as a tool for connection, advocacy, and change. Whether you are a patient, caregiver, sibling, advocate, or ally, this series is designed to help you find your voice, honor your lived experience, and understand when and how to share your story in ways that feel empowering and impactful.
This week, we’ll talk about the different purposes for storytelling, including advocacy, fundraising, and connection. We’ll also review examples of effective storytelling and hear from special guest Megan Kempf, an MPS III mom who led the charge in a fundraiser that brought in $5 million in just over two-weeks.