Board of Directors

Lisa Todd

Chairman

(MPS II Parent)

Albuquerque, NM

Steve Holland

Vice Chairman

(MPS I Parent)

River Oaks, TX

Lynn Hopkins

Treasurer

(MPS I Parent)

Long Beach, CA

Christine Tippett

Secretary

(MPS IVA Parent)

Littleton, CO

Nicole Bennett

(MPS II Sibling)

Thousand Oaks, CA

Stephanie Bozarth

(MPS IV Parent)

McLean, VA

Maureen Cote

(MPS VI Aunt)

Anna Maria, FL

Stephanie Cozine

(MPS I Parent)

New Castle, DE

Tamara Cullere

(MPS I Parent)

New Milford, NJ

Amy Holland

(MPS I Parent)

River Oaks, TX

Scott Hopkins

(MPS I Parent)

Long Beach, CA

Carl Kapes

(MPS IIIA Parent)

Wilmington, DE

Noni Langford

(MPS III Parent)

North Charleston, SC

Austin Noll

(MPS III Parent)

Middleton, WI

Mercedes Ramirez-Johnson

(ML II Parent)

Dallas, TX

Sheri Wise

(MPS IV)

Del City, OK

Staff

Terri Klein, MPA

President and CEO

Matthew Ellinwood, DVM, PhD

Chief Scientific Officer

Tracy Kirby

Director of Development

Leslie Urdaneta, MSW, LCSW

Director of Family Support and Communication

Carol Bryant, MSW, LCSW

Pathways Program Director

Madeline Casper, MPA

Development and Program Support Specialist

Angela Guajardo

Controller

Scientific Advisory Board

Lynda Polgreen - Chair

MD, MS

Allison Bradbury

PhD

Lorne A. Clarke

MD

Alessandra D’Azzo

PhD

Robert Desnick

MD, PhD

Patricia Dickson

MD

Julie Eisengart

PhD, LP

Paul Harmatz

MD

Mark Haskins

VMD, PhD

Kim Hemsley

PhD

John Hopwood

PhD

William Mackenzie

MD

Joseph Muenzer

MD, PhD

Elizabeth Neufeld

PhD

Matthew Pendleton

PhD

Kathy Ponder

MD

Mark Sands

PhD

Edward Schuchman

PhD

Calogera Simonaro

PhD

William Sly

MD

Lachlan Smith

PhD

Richard Steet

PhD

Charles H. Vite

DVM, PhD

Steven Walkley

DVM, PhD

Ray Wang

MD

David Wenger

PhD

Klane White

MD

Chester Whitley

PhD, MD

John H. Wolfe

VMD, PhD

Our Mission

The National MPS Society exists to cure, support and advocate for MPS and ML.

Contact Us Family Support Programs