Board of Directors

Lisa Todd

Chairman

(MPS II Parent)

Albuquerque, NM

Steve Holland

Vice Chairman

(MPS I Parent)

River Oaks, TX

Lynn Hopkins

Treasurer

(MPS I Parent)

Long Beach, CA

Maureen Cote

Secretary

(MPS VI Aunt)

Anna Maria, FL

Nicole Bennett

(MPS II Sibling)

Thousand Oaks, CA

Stephanie Cozine

(MPS I Parent)

New Castle, DE

Tamara Cullere

(MPS I Parent)

New Milford, NJ

Patricia Espinal

(MPS VI)

Napa, CA

Amy Holland

(MPS I Parent)

River Oaks, TX

Scott Hopkins

(MPS I Parent)

Long Beach, CA

Mercedes Johnson

(ML II)

Lewisville, TX

Carl Kapes

(MPS IIIA Parent)

Wilmington, DE

Jason Madison

(MPS II)

Allentown, PA

Stacey Montgomery

(MPS IIIB)

Cedar Rapids, IA

Austin Noll

(MPS III Parent)

Middleton, WI

Sheri Wise

(MPS IV)

Del City, OK

Staff

Terri Klein, MPA, CNPM

President and CEO

Matthew Ellinwood, DVM, PhD

Chief Scientific Officer

Tracy Kirby

Director of Development

Leslie Urdaneta, MSW, LCSW

Director of Family Support and Communication

Carol Bryant, MSW, LCSW

Pathways Program Director

Wendy Spaulding, CNPM, MBA

Director of Major Gifts & Planned Giving

Angela Guajardo

Controller

Scientific Advisory Board

Lynda Polgreen - Chair

MD, MS

Allison Bradbury

PhD

Lorne A. Clarke

MD

Alessandra D’Azzo

PhD

Robert Desnick

MD, PhD

Patricia Dickson

MD

Julie Eisengart

PhD, LP

Paul Harmatz

MD

Mark Haskins

VMD, PhD

Kim Hemsley

PhD

John Hopwood

PhD

William Mackenzie

MD

Joseph Muenzer

MD, PhD

Elizabeth Neufeld

PhD

Matthew Pendleton

PhD

Kathy Ponder

MD

Mark Sands

PhD

Edward Schuchman

PhD

Calogera Simonaro

PhD

William Sly

MD

Lachlan Smith

PhD

Richard Steet

PhD

Charles H. Vite

DVM, PhD

Steven Walkley

DVM, PhD

Ray Wang

MD

David Wenger

PhD

Klane White

MD

Chester Whitley

PhD, MD

John H. Wolfe

VMD, PhD

Our Mission

The National MPS Society exists to cure, support and advocate for MPS and ML.

Contact Us Family Support Programs