Our 2021 Annual Report features highlights, financial reports, and donor acknowledgments. You can read this publication by clicking here to view or download the report in its entirety.

Terri Klein, President and CEO shared in the opening letter:

Anyone who has been touched by MPS or ML can affirm: One moment can change everything. Whether it is when you first hear the words “Your child has MPS” or the moment you hear “We have a treatment to help,” life is forever changed. No matter the type or stage in the rare disease journey, our mission is to support families who hear those words.

Thank you to our donors, volunteers, families, and all that support our mission. We hope you find inspiration and hope in our message as we work to cure, support, and advocate for MPS and ML.

Lisa P. Todd, Chairman of the Board
Terri L. Klein, President and CEO