The National MPS Society has been asked to share this information with our families who have a child with MPS. The Mayo Clinic Biochemical Genetics Laboratory in Rochester, MN is developing newborn screening and biomarker for lysosomal diseases, including all the MPS diseases. They are asking for a blood sample collected on newborn filer paper for this testing. Details about this testing and contact information is available in their recruitment flyer.
- First Treatment for MPS IVA Approved
- Annual EveryLife Art Contest
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- BioMarin Announces Selection of NAGLU, BMN 250 for the Treatment of Sanfilippo B