The National MPS Society has been asked to share this information with our families who have a child with MPS. The Mayo Clinic Biochemical Genetics Laboratory in Rochester, MN is developing newborn screening and biomarker for lysosomal diseases, including all the MPS diseases. They are asking for a blood sample collected on newborn filer paper for this testing. Details about this testing and contact information is available in their recruitment flyer.
- MPS Awareness Day is May 15
- 2017 research grant program open
- Working toward a cure
- Shop for a Cause- hosted by LuLaRoe's Heather Palmer