The National MPS Society has been asked to share this information with our families who have a child with MPS. The Mayo Clinic Biochemical Genetics Laboratory in Rochester, MN is developing newborn screening and biomarker for lysosomal diseases, including all the MPS diseases. They are asking for a blood sample collected on newborn filer paper for this testing. Details about this testing and contact information is available in their recruitment flyer.
- Society’s 2014 Research Grants Announced
- Information about new resources for families, specifically caregivers
- Don’t let Congress repeal incentives for rare disease drug development!
- First Treatment for MPS IVA Approved