The National MPS Society has been asked to share this information with our families who have a child with MPS. The Mayo Clinic Biochemical Genetics Laboratory in Rochester, MN is developing newborn screening and biomarker for lysosomal diseases, including all the MPS diseases. They are asking for a blood sample collected on newborn filer paper for this testing. Details about this testing and contact information is available in their recruitment flyer.
- Shop for a Cause- hosted by LuLaRoe's Heather Palmer
- 2017 Annual Family Conference - registration now open!
- Napa Valley Walk/Run
- New board members elected