Category Archives: Uncategorized
Minneapolis Madness for MPS Walk/Run
DATE: Saturday, August 5th TIME: 7:30 am Registration 9:00 am – Chip Timed 5K Run 9:15 am – 1 Mile Memorial Walk 10:30 am- Race and Courage Awards University of …
Working toward a cure
As part of the National MPS Society’s mission, we are dedicated to finding cures for MPS and ML. With the help of our Scientific Advisory Board, we fund research exploring …
We made 30 a year to remember at our recent family conference in Columbus, Ohio! With a record number of families, siblings and affected patients attending, we had three days …
2015 Annual Report
We recently released our 2015 annual report, featuring the National MPS Society’s highlights and accomplishments for 2015. Copies were mailed to members and donors across the country. If you didn’t …
ArmaGen Receives Rare Pediatric Disease Designation from FDA for MPS I
ArmaGen Inc. announced that the U.S. Food and Drug Administration has granted rare pediatric disease designation to AGT-181, a potential treatment for patients with Hurler syndrome (MPS I). The designation …
Become a member!
Join our efforts to find a cure for MPS and related diseases. Together we can make a difference!
You can sign up online, by mail, phone or fax. Click for details and to learn about our membership benefits.
MPS II Non-Treatment Research Studies
Are you or your child at least 3 years old and diagnosed with Mucopolysaccharidosis Type II (MPS II), otherwise known as Hunter syndrome? Do you speak English or Spanish and …
#GivingTuesday is December 2, 2014
Black Friday. Cyber Monday. #GivingTuesday!
Join the global movement! Give back on Tuesday, Dec 2nd
Let’s Rally for Families!
Please help us raise $10,000 for our Family Support programs in the month of October. Together we can do it! While research is developing, the need for family assistance continues to grow.