Category Archives: News

News & Events

Webinar – How to be an MPS Awareness Day Advocate!

National MPS Awareness Day is May 15th – a great day to celebrate our survivors and those we have lost too soon. It’s also a powerful opportunity to educate our …

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Million Dollar Bike Ride 2016

The National MPS Society and The Ryan Foundation have teamed up again to Ride for Research. On May 7th TEAM MPS will participate in the Million Dollar Bike Ride for …

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National Run in Napa – MPS Race for a Cure

The Society is hosting a run in the Napa, CA area on International MPS Awareness Day – May 15th! Click here to learn more and register.

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Society’s 2016 Research Grants Announced

The Application for Letter of Intent is now available here. The National MPS Society funds research that may lead to treatments for MPS diseases and solicits applications for innovative research …

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Abeona Therapeutics Announces Initial European Regulatory Approvals for Phase 1/2 Gene Therapy Clinical Studies for Sanfilippo Syndromes Type A and B

Abeona Therapeutics, Inc. has announced that the Interministerial Council of Genetically Modified Organisms has approved the Genetically Modified Organism (GMO) Voluntary Release regulatory filings for both Phase 1/2 Gene Therapy …

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Save the Date – 2016 Family Conference!

Our 2016 Family Conference will be August 4th through 6th in Columbus, Ohio. Additional conference information will be posted on our website, social media, and mailed to members in February. …

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National MPS Society Receives Second Consecutive Four-Star Charity Rating

The National MPS Society is honored to share that we have received our second consecutive Four-Star charity rating from Charity Navigator! This rating ranks the Society in the top 21% …

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Shire Combining with Baxalta

We are excited to share that Shire and Baxalta have reached an agreement under which Shire will combine with Baxalta. Shire Chief Executive Officer Flemming Ornskov, M.D., M.P.H, commented: “This …

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2015 MDBR MPS Grant Awards

The National MPS Society and The Ryan Foundation teamed up this past spring to ride for research. TEAM MPS raised $50,000. The Annual Event hosted by Penn Medicine Orphan Disease …

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Camp Korey’s Spring and Summer 2016 Programs

Camp Korey is now accepting applications for their 2016 programs! The camp’s goal is to empower children and families living with serious medical conditions through year-round life changing experiences, always …

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