Category Archives: News

News & Events

Scholarships awarded

Each year, the Family Support Committee awards a number of continuing education scholarships. Post secondary education scholarships are available for individuals with MPS and ML, their siblings (under age 30), …

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2017 Annual Family Conference – registration now open!

The National MPS Society is pleased to announce that the 2017 Annual Family Conference will be held in Minneapolis, MN at Hilton Minneapolis on August 3rd – 5th. Registration is …

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Million Dollar Bike Ride

The National MPS Society and The Ryan Foundation would like to thank all of our members and supporters for another successful Million Dollar Bike Ride! #Team MPS boasted a team of …

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MPS Awareness Day is May 15

On May 15, the National MPS Society, along with the international MPS community, celebrates International MPS Awareness Day. On this day, we remember all the children and adults who suffer …

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2017 research grant program open

Each year, the National MPS Society awards deserving medical researchers grants to pursue treatments and cures for MPS and ML. In 2016, the MPS Society awarded $485,000 in grant funding. …

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Shop for a Cause- hosted by LuLaRoe’s Heather Palmer

        For more info go here. Want to join this Facebook group? Sign up here.

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New board members elected

The results of the 2017 board of directors election are in! We are pleased to welcome some new faces and are happy to see some familiar ones, as well. Thank …

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2015 Annual Report

We recently released our 2015 annual report, featuring the National MPS Society’s highlights and accomplishments for 2015. Copies were mailed to members and donors across the country. If you didn’t …

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MPS Registry

DURHAM, N.C. — With the click of a mouse, patients with a rare disease will now be one step closer to cures for mucopolysaccharidosis and mucolipidosis. The National MPS Society, …

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Raising Awareness

Like any teenage girl, Alli Williams, 17, has a wish. While being a bit taller is on her list, she is truly dedicated to one singular goal — raising awareness …

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