Category Archives: News

News & Events

New board members elected

The results of the 2017 board of directors election are in! We are pleased to welcome some new faces and are happy to see some familiar ones, as well. Thank …

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Annual Conference

We made 30 a year to remember at our recent family conference in Columbus, Ohio! With a record number of families, siblings and affected patients attending, we had three days …

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2015 Annual Report

We recently released our 2015 annual report, featuring the National MPS Society’s highlights and accomplishments for 2015. Copies were mailed to members and donors across the country. If you didn’t …

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MPS Registry

DURHAM, N.C. — With the click of a mouse, patients with a rare disease will now be one step closer to cures for mucopolysaccharidosis and mucolipidosis. The National MPS Society, …

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Raising Awareness

Like any teenage girl, Alli Williams, 17, has a wish. While being a bit taller is on her list, she is truly dedicated to one singular goal — raising awareness …

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MPS Awareness Day 2016!

This year we are taking a new approach to honoring MPS Awareness Day, May 15, 2016. We are beginning our awareness activities on May 1. Below are some terrific ideas …

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30th Annual Family Conference – Ohio

The National MPS Society invites you to attend the 30th Annual Family Conference in Columbus, OH, August 4th-6th. The meeting begins Thursday evening with dinner and syndrome breakout sessions. Newly …

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ArmaGen MPS I & MPS II Clinical Trial Updates

ArmaGen has released updates for their Phase 1 trials of MPS I and MPS II. Read the full update here.

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Webinar – How to be an MPS Awareness Day Advocate!

National MPS Awareness Day is May 15th – a great day to celebrate our survivors and those we have lost too soon. It’s also a powerful opportunity to educate our …

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Million Dollar Bike Ride 2016

The National MPS Society and The Ryan Foundation have teamed up again to Ride for Research. On May 7th TEAM MPS will participate in the Million Dollar Bike Ride for …

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