Category Archives: Featured

2017 Annual Family Conference – registration now open!

The National MPS Society is pleased to announce that the 2017 Annual Family Conference will be held in Minneapolis, MN at Hilton Minneapolis on August 3rd – 5th. Registration is …

Posted in Events, Featured, News | Leave a comment

Napa Valley Walk/Run

DATE: May 21 – Sunday TIME: 8:30 am Registration 10:00 am – 5K Run 10:15 am – 1 Mile Walk Veterans Home of California 100 California Drive Yountville, CA 94599 …

Posted in Featured, News | Leave a comment

New board members elected

The results of the 2017 board of directors election are in! We are pleased to welcome some new faces and are happy to see some familiar ones, as well. Thank …

Posted in Featured, News | Leave a comment

2015 Annual Report

We recently released our 2015 annual report, featuring the National MPS Society’s highlights and accomplishments for 2015. Copies were mailed to members and donors across the country. If you didn’t …

Posted in Featured, News | Leave a comment

MPS Registry

DURHAM, N.C. — With the click of a mouse, patients with a rare disease will now be one step closer to cures for mucopolysaccharidosis and mucolipidosis. The National MPS Society, …

Posted in Featured, News | Leave a comment

Raising Awareness

Like any teenage girl, Alli Williams, 17, has a wish. While being a bit taller is on her list, she is truly dedicated to one singular goal — raising awareness …

Posted in Featured, News | Leave a comment