Family Support Programs for Members

Family Support is one of the centerpieces of the Mission of the Society. The National MPS Society has been focused on Family Support since the beginning, and over the last few years has ramped up the efforts to better support member families.

Family Support Programs include: Family Assistance Program, Extraordinary Experiences, Regional Social Gatherings, dues waived program. Please check back often as your Family Support Committee works hard to bring you new programs. If you have a suggestion for a new program, please let us know.

Please use our new online application system for all Family Support Program Applications.  If you are a first time user, please complete the registration process.  Once you are logged in, you will be directed to the applications.  If you have already registered, simply log in.

If you are not able to complete the application using our online application system- please contact Alison Blue, Program Director at or 919-806-0101.

Family Support Programs are for eligible members of the National MPS Society.

Continuing Education Scholarship Program

Post secondary education scholarships are available for individuals with MPS and related diseases, their siblings (under age 30), and their children.  Scholarship applications are available in January.  The application deadline is March 15.  Applications are only accepted using our online application system.

Extraordinary Experiences

A program designed especially for individuals affected with MPS and Related Diseases who are 13 years of age and older. Grants of up to $1000 are available to help individuals have their very own life enriching extraordinary experience. Click here to apply.

Extraordinary Experience Guidelines

Family Assistance Program

Grants for special equipment or medical aids may be requested up to a maximum of $3,000 for parents of an individual with MPS or related diseases or an adult with MPS or related diseases per 12-month period, dependent on available funds and the Committee’s decision. Click here to apply.

Family Assistance Program Guidelines

Membership Assistance Program

Dues can be waived for families experiencing financial difficulties. Complimentary membership is offered to families who have a recent diagnosis and for adults with MPS.  Membership Assistance Program applications can be completed using our online application system.

Medical Travel Assistance Program

Families may need to travel long distances to consult with medical professional who are knowledgeable about MPS and related diseases. The Medical Travel Assistance Program (MTAP) helps fund out of town travel costs for such non-recurring medical appointments. MTAP may reimburse up to $500 per affected individual per 12 month period in transportation costs for member families traveling to a medical appointment more than 200 miles from their home. Click here to apply.

Medical Travel Assistance Program Guidelines

Regional Social Events

We encourage families to arrange social get-togethers for other families in their region. The Society offers grants to help assist with funding of your event.  Click here to apply.

Regional Social Event Guidelines

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