Tell Congress to Protect the NIH & FDA from Devastating Budget Cuts

November 8, 2012 


Elections are over, and it’s time for Congress and the President to return to Washington and get back to work.   And they must act quickly to protect the National Institutes of health (NIH) and the Food and Drug Administration (FDA) from funding cuts that would paralyze the development of treatments for patients with rare diseases, including MPS.

If lawmakers can’t reach a budget agreement, something called sequestration – also called “fiscal cliff” – will happen in January.  If it happens, automatic budget cuts of $1 trillion will go into effect for nearly all government programs, including an 8% cut to both the NIH and FDA.  This will dramatically slow progress towards developments of new treatments and cures for rare diseases, including MPS.

Click here to tell your members of Congress that automatic cuts to NIH and FDA can’t happen.

It’s essential that our members of Congress hear a LOUD and CLEAR message from us that these cuts are unacceptable and would be devastating to our families.  We are approaching this fiscal cliff because lawmakers have been unable to agree on a budget compromise for a year.  Elections are over – tell them to get back to work on saving lives.



Stephanie Bozarth
Vice President
Chair, Committee on Federal Legislation
National MPS Society
PO Box 14686
Durham, NC  27709
919-806-0101 telephone

P.S.  For more information on Sequestration visit

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