National MPS Society nominates MPS I to be considered for panel of recommended newborn screenings

The National MPS Society submitted the nomination form for MPS I to the Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children (SACHDNC), for consideration of being added to the panel of recommended newborn screenings. Following the initial review of the documents, they will be sent to the chair of SACHDNC for review by the appropriate workgroup. We have heard that the plan is for the SACHDNC to review our nomination package at their next meeting May 17 -18, 2012, based upon timing and completeness of the package. More information about the process can be found on the Health Resources and Services Administration website.

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