Hunter in Focus, a Positive Exposure™ Project, is the first global photography exhibit to raise awareness for Hunter syndrome, a rare and progressive genetic disorder. This exhibit shares the stories of remarkable individuals and their personal journey with the disorder.
In partnership with Shire Human Genetic Therapies (HGT), Rick Guidotti, founder of Positive Exposure™, traveled around the world photographing people with Hunter syndrome with the hope of increasing awareness for the disorder. Because the signs and symptoms of Hunter syndrome are common to many childhood ailments, it is often difficult to diagnose.
Hunter In Focus provides an opportunity to aid in the recognition of Hunter syndrome in a unique and engaging format. The stories of Hunter patients have been captured and told through these photographs, focusing on the person, rather than defining them by this debilitating disorder.
Shire partnered with Positive Exposure™ on this project to create a deepened sense of community and support among people with Hunter syndrome worldwide, and to reinforce the company’s long-term commitment to the global Hunter community.
The exhibit was launched in 2012 at Grand Central Terminal in New York City and traveled to Poland and Germany in its inaugural year. Check the calendar to see when Hunter In Focus will be coming to an area near you.