Hunter Parents Community website

In October, the Hunter Parents Community, an online community sponsored by Shire, was launched. The website is an exclusive forum for primary caregivers of children with Hunter Syndrome to connect and share their personal stories and experiences, as well as give and receive tips for facing everyday challenges. In addition to strengthening the network of Hunter Parents, the Community aims to increase awareness about Hunter Syndrome by encouraging primary caregivers to talk about Hunter syndrome with members of their community as HealthTalkers and to use their personal experience to help others understand this life-altering condition. The Hunter Parents Community is not a forum to discuss medical, product or treatment options, but rather allows Hunter Parents to support and learn from each other and raise awareness about Hunter Syndrome. To join the Hunter Parents Community, please go to

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