The Annual Fund has become a critical funding source for the National MPS Society. It funds our Family Support programs, legislative advocacy work, and operations of the Society. This year Jim and Amy Yard, Annual Fund Chairs and parents of Christian, share the story of Christian’s journey as a superhero combating MPS II and the struggles it presents:
Dear Friends and Members of the National MPS Society Family,
Amy and I ask that you join our family and support the National MPS Society by donating to the 2015 Annual Fund. The Annual Fund provides programs and hope for families struggling with MPS and related diseases.
When our son Christian came into this world, we had the same hopes and dreams for him that every parent has for their child. While those hopes and dreams continue, they have changed. Our primary hope now is for Christian to live. This tragic change began for our family when Christian was almost two years old, and we observed signs of developmental regression, which was very different from the development of our older daughter, Ella. Christian, who rapidly developed language and motor skills, slowly began losing the ability to speak and began to have recurring challenges with breathing complications and fine motor skills.
We were fortunate that a routine visit to our doctor resulted in an early diagnosis. Through our initial visit to the National MPS Society website, we quickly received information about clinical trials, connecting with families, written information about our son’s disease and the annual family conference. An early diagnosis with a disorder as progressive as MPS is critical to managing the symptoms and improving the overall quality of life.
Our son Christian, our superhero…
When it comes to dealing with the tremendous challenges that families face in managing rare and life-limiting disorders, parents often ask themselves: “Why our son?” “Why our family?” “Why can’t we lead a normal life?” Through faith, family, friends and the National MPS Society, our lives have become a newfound normal, and Christian has become our superhero! He is our hero because he provides an example to us and all those he touches on how important life is, how to face life with a positive attitude and how to not measure life by days—but instead by accomplishments.
Through the National MPS Society, we see these accomplishments happen each and every day and witness firsthand the impact the Society is having on our MPS kids. Our kids are benefiting from funding that supports families connecting, doctors communicating, care-givers understanding, and MPS kids improving from research that has led to clinical trials and current treatments that provide an improved quality of life and hope for a cure.
With money that supports the Society, we have hope that Christian can take off the superhero outfit and lead a longer and happier life. We are honored to work with the National MPS Society and ask for your financial support for its Annual Fund. This is a wonderful organization that helps bring families together and is dedicated to finding cures for these devastating diseases.
Give to the Annual Fund today and provide hope for a cure for Christian and all of the children affected with MPS and related diseases.
Thank you from the bottom of our hearts,
Jim and Amy Yard
Parents of Christian, MPS II
The National MPS Society’s 2015 Annual Fund program is focused on three general areas: (1) where needed most (2) legislative activities and (3) family assistance. By improving the Society’s capabilities and effectiveness, the two programmatic areas of legislative and family assistance will be strengthened. The Annual Fund program provides donors the opportunity to give a gift in any of these three areas.
By building the capacity of the Society, proceeds from the Annual Fund raise public awareness, improve advocacy, strengthen the leadership and overall effectiveness of the organization, and expand the Society’s leadership role in public policy formation.
You can make a donation online here.
Or make a check payable to: National MPS Society and send to
National MPS Society
Attn: Annual Fund
P.O. Box 14686
Durham, NC 27709
For more information contact Terri Klein at 919-806-0101 or email@example.com.