29th Annual Family Conference – Utah


The National MPS Society invites you to attend the 29th Annual Family Conference in Salt Lake City, UT from Sept. 17–19, 2015 at the Marriott City Center.  To view the conference flyer, please click here. To access the conference registration site, please click here.

You’ve been hearing and reading about the many companies with FDA-approved treatments for MPS diseases that are in clinical trials, or are moving toward clinical trials in the next 12–24 months. We truly have entered a new and unbelievably exciting era for MPS diseases. Never before have there been so many companies developing treatments, many of which are focused on treating the central nervous system. The Society is committed to providing you with current information, so we arranged for representatives from these companies to be available for an “open house.” This will allow meeting attendees to personally talk with these representatives and hear firsthand about new treatments.

We are pleased to offer scholarships to attend our 29th Annual Family Conference. Scholarships will be awarded to a mother, father or legal guardian of a child with MPS or related disease, or to an adult with MPS or related disease. Scholarships will help enable families and individuals, who are not financially able, to attend the conference. Preference is given to families attending a conference for the first time. The exact number of scholarships offered will be determined by the requests received and the financial needs of the applicant. The application form and explanatory letter must be completed and submitted electronically no later than June 1, 2015. Click here for more details.

2015 Walk Run Logo_smlOn Friday evening, join the National MPS Society for the “Run the Night – 5K Walk/Run” at Liberty Park in Salt Lake City. The event will include a professionally timed 5K along with an illuminated memorial walk. The course is paved and will lap Liberty Park. Click here for walk/run registration details or visit https://support.mpssocietygive.org/saltlakecity5k. Every registrant will receive a glow-in-the-dark T-shirt. Buses will be provided for transportation. Early bird pricing available. Families have the opportunity to build an easy website and team fundraise!

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