Author Archives: Terri Klein

Charity Navigator 4 Star Rating 2016

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Give to the 2014 Annual Fund: Chair Lynn Hopkins

Meet Lynn Hopkins, our Chair for the 2014 Annual Fund. Lynn and the National MPS Society hope that your family will make a difference by giving to the 2014 Annual Fund and supporting our mission to keep the Society strong.

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10th Annual Volley for Support

East Cherry Hill High School, Cherry Hill, NJ 5:30pm

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BioMarin Announces Selection of NAGLU, BMN 250 for the Treatment of Sanfilippo B

BioMarin Announces Selection of NAGLU Fusion Protein Drug Development Candidate BMN 250 for the Treatment of Sanfilippo B (MPS IIIB) Please click here for the full BioMarin News Release

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BioMarin announces Phase III study of GALNS for MPS IV meets primary endpoint

BioMarin announces Phase III study of GALNS for MPS IV meets primary endpoint” FLYER (pdf)

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SACFAC Fall 2012 – Let us Run for Your Loved One!

It is that time again! Sponsor A Child For A Cure is a terrific opportunity for your family to get involved with the Walk/Run program for research without attending an event!

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Self-Expression Artwork Contest – submission deadline April 30

The National MPS Society is hosting an Artwork contest in honor of International MPS Awareness Day! We asked adults and children with MPS or related diseases to submit original artwork. Winners to be announced on MPS Awareness Day!

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