Author Archives: mps

International MPS Awareness Day – May 15

Thank you to everyone who participated in this year’s MPS Awareness Day, which took place on May 15, 2015!

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Shire MPS II and MPS IIIB Program Updates

Click the links below to view MPS II and MPS IIIB program updates from Shire. MPS II program update. MPS IIIB program update.

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Short Market Research Survey Regarding ERT Infusions

Please Participate in Short Market Research Survey Regarding ERT Infusions. The National MPS Society has recently partnered with Engage Health, a market research company who is interested in learning more …

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2012 MPS III Grand Challenge Grant Update

2012 MPS III Grand Challenge Research Grant Update In February of 2012, the National MPS Society announced the availability of a $235,000 Grand Challenge Grant for the treatment of MPS …

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FDA Meeting registration deadline EXTENDED – May 30!

There is an FDA Public Meeting on Neurological Manifestations of Inborn Errors of Metabolism Patient-Focused Drug Development on June 10. Your participation is important, so please do not miss this very important meeting!

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28th Annual Family Conference – Disney

The Family Conference in Disney is from December 18-20. Click here for the link to register! Registration deadline – November 26, 2014.

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40 Years of Achievements Gala photos!

The photos from our 40 Years of Achievements Gala are now available! Click here to find out where to view them!

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2014 Shire ACES Scholarship Program – Deadline: June 6, 2014

Shire is proud to announce the 2014 Shire ACES Scholarship Program! A $5000 scholarship will be awarded for the upcoming 2014-2015 school year. The application deadline is June 6, 2014. …

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Chart Your Own Course: A Scholarship Program for the LSD Community – due June 13

Chart Your Own Course: A Scholarship Program for the LSD Community Apply by June 13! What Is Chart Your Own Course? Genzyme is excited to announce the open application period …

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MPS IVA webinar – May 8, 2014 at 8 PM EDT

MPS IVA webinar on May 8, 2014 beginning at 8pm EDT. Hosted by Dr. Raymond Wang, it will include information about MPS IVA and results from the Vimizim clinical trials. …

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