Author Archives: Alison Blue

MPS Registry

DURHAM, N.C. — With the click of a mouse, patients with a rare disease will now be one step closer to cures for mucopolysaccharidosis and mucolipidosis. The National MPS Society, …

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MPS Awareness Day 2016!

This year we are taking a new approach to honoring MPS Awareness Day, May 15, 2016. We are beginning our awareness activities on May 1. Below are some terrific ideas …

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30th Annual Family Conference – Ohio

The National MPS Society invites you to attend the 30th Annual Family Conference in Columbus, OH, August 4th-6th. The meeting begins Thursday evening with dinner and syndrome breakout sessions. Newly …

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ArmaGen MPS I & MPS II Clinical Trial Updates

ArmaGen has released updates for their Phase 1 trials of MPS I and MPS II. Read the full update here.

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Webinar – How to be an MPS Awareness Day Advocate!

National MPS Awareness Day is May 15th – a great day to celebrate our survivors and those we have lost too soon. It’s also a powerful opportunity to educate our …

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Million Dollar Bike Ride 2016

The National MPS Society and The Ryan Foundation have teamed up again to Ride for Research. On May 7th TEAM MPS will participate in the Million Dollar Bike Ride for …

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National Run in Napa – MPS Race for a Cure

The Society is hosting a run in the Napa, CA area on International MPS Awareness Day – May 15th! Click here to learn more and register.

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Society’s 2016 Research Grants Announced

The Application for Letter of Intent is now available here. The National MPS Society funds research that may lead to treatments for MPS diseases and solicits applications for innovative research …

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Klenke Bowl

Saturday, March 5, 2016 Highland, IL Contact: 618-888-2204 See flyer and website for more details.

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Abeona Therapeutics Announces Initial European Regulatory Approvals for Phase 1/2 Gene Therapy Clinical Studies for Sanfilippo Syndromes Type A and B

Abeona Therapeutics, Inc. has announced that the Interministerial Council of Genetically Modified Organisms has approved the Genetically Modified Organism (GMO) Voluntary Release regulatory filings for both Phase 1/2 Gene Therapy …

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