Monthly Archives: January 2016

Abeona Therapeutics Announces Initial European Regulatory Approvals for Phase 1/2 Gene Therapy Clinical Studies for Sanfilippo Syndromes Type A and B

Abeona Therapeutics, Inc. has announced that the Interministerial Council of Genetically Modified Organisms has approved the Genetically Modified Organism (GMO) Voluntary Release regulatory filings for both Phase 1/2 Gene Therapy …

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Save the Date – 2016 Family Conference!

Our 2016 Family Conference will be August 4th through 6th in Columbus, Ohio. Additional conference information will be posted on our website, social media, and mailed to members in February. …

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National MPS Society Receives Second Consecutive Four-Star Charity Rating

The National MPS Society is honored to share that we have received our second consecutive Four-Star charity rating from Charity Navigator! This rating ranks the Society in the top 21% …

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Shire Combining with Baxalta

We are excited to share that Shire and Baxalta have reached an agreement under which Shire will combine with Baxalta. Shire Chief Executive Officer Flemming Ornskov, M.D., M.P.H, commented: “This …

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