Monthly Archives: March 2014

Call for Letters of Intent: Research Initiative 2014 – April 28 deadline

We’re now accepting Letters of Intent for our 2014 Research Initiative!

Did you know that several of our esteemed researchers got their start from National MPS Society research grants? Researchers: read more for submission details.

Posted in Uncategorized | Leave a comment

Society’s 2014 Research Grants Announced

The Application for Letter of Intent is now available here. The National MPS Society funds research that may lead to treatments for MPS diseases and solicits applications for innovative research …

Posted in News | Leave a comment

Information about new resources for families, specifically caregivers

The website at is a guide for family caregivers of loved ones with rare diseases and addresses their distinct needs.  The resources available include: ·         Products, services, and technology …

Posted in News | Leave a comment

Don’t let Congress repeal incentives for rare disease drug development!

This year, it is likely that our members of Congress will pass tax reform legislation. One of the items that could be on the chopping block is a current tax …

Posted in News | Leave a comment