Monthly Archives: December 2013

Compassionate Use of Unapproved Therapies

Compassionate Use of Unapproved Therapies The National MPS Society has been contacted by several of our members concerning compassionate use of unapproved therapies for MPS conditions. In response, we would …

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Fifth Annual EveryLife Art Contest

Celebrate the Holiday Season by Sharing the Gift of Your Creativity! The EveryLife Foundation for Rare Diseases announces the opening of the 2014 Art Contest! Big News: the Annual EveryLife …

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Aldurazyme 2014 Co-Pay Assistance Program

The co-pay assistance program for 2014 has been announced.  Click here to learn more.

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Transitions: Managing Your Own Healthcare – What Every Teen with an LSD Needs to Know

Click here for the book: “Transitions:  Managing Your Own Healthcare – What Every Teen with an LSD Needs to Know.” This book is intended to help families successfully manage the …

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