Monthly Archives: November 2013

FDA Advisory Committee votes “Yes” to Vimizim for MPS IVA

November 19th was a historic day for individuals with MPS IVA, and the National MPS Society played a huge part!

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Caregiving Webinar Thursday, November 21 from 2-3:30 PM EST

There will be a web seminar focused on caregiving on Thursday, November 21 from 2-3:30PM EST.  Information about registration can be found here: https://globalgenes.org/caregiver-webinar/.  If unable to participate, recording will …

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