Monthly Archives: March 2013
Genzyme Scholarship Program – Apply by April 30
What Is Chart Your Own Course? Genzyme has introduced Chart Your Own Course, a new program established to help students in the lysosomal storage disorder (LSD) community pursue their educational …
Shire MPS II Neurodevelopmental Observational Study
Shire Human Genetic Therapies, Inc. is sponsoring an observational clinical trial to evaluate the neurodevelopmental status of pediatric patients with MPS II who may show signs of central nervous system …
Synageva BioPharma preclinical data highlighting ability of SBC-103 to reduce accumulation of substrate in brain of MPS III B animal model
Synageva BioPharma, a clinical stage biopharmaceutical company, has established preclinical data highlighting the ability of SBC-103 to reduce the accumulation of substrate in the brain of an MPS III B …
Thanks to YOU!
Thanks to your donations and fundraising in 2012, the Society’s Board of Directors approved an investment of almost $450,000 in new MPS research funds for 2013!
Read the letter from our Executive Director.
Have you considered hosting a walk/run?
Have you been thinking about having a Walk/Run in 2015? Hosting an event is a great way to support the National MPS Society. Find out how!
Family Support Programs for Members
Family Support is one of the centerpieces of the Mission of the Society. The National MPS Society has been focused on Family Support since the beginning, and over the last few years has ramped up the efforts to better support member families. Check out the programs we have available for members!
Shire is now accepting applications for the ACES scholarship program
This scholarship program is continuing last year’s success in recognizing academic achievement in the lysosomal storage disease (LSD) community. High school graduates or GED credential recipients who have been diagnosed …