Monthly Archives: November 2012

National MPS Society announces new video: The Journey of Hope

The National MPS Society’s Education/Publicity committee is excited to launch an incredibly important video outreach campaign. This video series is a project led by Beth Karas, whose brothers Jonathan and …

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Tell Congress to Protect the NIH & FDA from Devastating Budget Cuts

November 8, 2012  Friends: Elections are over, and it’s time for Congress and the President to return to Washington and get back to work.   And they must act quickly to …

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BioMarin announces Phase III study of GALNS for MPS IV meets primary endpoint

BioMarin announces Phase III study of GALNS for MPS IV meets primary endpoint” FLYER (pdf)

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