Monthly Archives: December 2011

Join us! National MPS Society endorses the Unlocking Lifesaving Treatments for Rare diseases Act of 2012

Help support ULTRA! Take action by contacting your legislators! In December 2011, U.S. Representatives Cliff Stearns (R-FL) and Ed Towns (D-NY), two senior members of the Energy and Commerce Committee, introduced …

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Genzyme announces 2012 Co-Pay Assistance Program

Genzyme’s Co-Pay Assistance Program will help eligible individuals who are prescribed treatment with one of Genzyme’s enzyme replacement therapies with their eligible drug related out-of-pocket expenses, including co-pays, co-insurance and …

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Shire announces 2012 OnePath Co-pay Assistance Program

Shire HGT is pleased to announce its new Co-pay Assistance Program for 2012 with 100% coverage for eligible expenses. Shire will assist eligible patients in the United States who have commercial insurance with …

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Hunter Parents Community website

In October, the Hunter Parents Community, an online community sponsored by Shire, was launched. The website is an exclusive forum for primary caregivers of children with Hunter Syndrome to connect and share …

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