MPS in the News

Once Again the National MPS Society Receives another 4 Star Rating from Charity Navigator for 2012

The National MPS Society was informed in March that we have received the coveted 4 Star Rating from Charity Navigator. This exceptional designation from Charity Navigator differentiates the National MPS Society from its peers and demonstrates to the public it is worthy of their trust.  This is the 7th year that the National MPS Society has received a 4 Star Rating, illustrating sound fiscal responsibility.

Letter from Mr. Ken Berger, President Charity Navigator

___________________________________________________________________________

National MPS Society Receives a Consecutive 4 Star Rating from Charity Navigator

The National MPS Society was informed in October that they have received the coveted 4 Star Rating from Charity Navigator. This exceptional designation from Charity Navigator differentiates the National MPS Society from its peers and demonstrates to the public it is worthy of their trust.

Letter from Leone Giles, President Charity Navigator

___________________________________________________________________________

Scientific protocol for treating children with severe MPS I with a combination of Stem Cell Transplantation and Enzyme Replacement Therapy at the University of Minnesota

The University of Minnesota has been a pioneer in the treatment of children with severe MPS I, also called Hurler syndrome, and other storage disorders using stem cell transplantation (i.e., bone marrow or cord blood transplantation). To date, approximately 100 transplants have been performed at the University of Minnesota for Hurler syndrome alone. More…