Press Room

Key Messages

Media/Key Messages National MPS Society

Key Messages

The National MPS Society is a leading authority on MPS and related diseases. The Society is the primary source of information on MPS diseases for parents, researchers, pharmaceutical companies, physicians and government bodies. The Society was the first support organization for MPS in the world and was formed in 1974 by a group of parents. It quickly expanded to its present level of 800 members. At least 20 similar organizations now exist in other countries around the world.

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Press Tips for Families

Beth Karas
Court TV Reporter

Introduction
As you learn to use the media to tell your story, you need to understand the basic process and a few rules. Keep in mind that without you, the story cannot be told. Likewise, the media could decide to withdraw from the story. So, it's in everyone's interest to work together to make the story happen. Television viewers-and to some extent readers-are attracted to character-driven stories, as opposed to issue-driven stories. While the objective is to educate the public about the MPS and related diseases and the MPS Society (the issue), it can be done successfully through your personal experience (the characters).