3rd Annual Links for Lucas 

Date: July 26, 2010 - Monday

Location: Finkbine Golf Course, University of Iowa

Hosts: The Montgomery Family

The Montgomery Family will be hosting the 3rd Annual Links for Lucas in Iowa City, Iowa.  All proceeds for the event will be provided to grants for MPS III, Sanfilippo Research.  We are currently looking for sponsors! Contact Lew Montgomery, Chair of the committee for details or print out the brochure attachments.  Help the Montgomerys and Lucas swing for a cure.  Each and every dollar counts! Email us at  This e-mail address is being protected from spambots. You need JavaScript enabled to view it .

Participant and Sponsor Brochure Download

3rd Annual NEWSLETTER Download

Shots for Sean Golf Tournament 

Date: August 5th      

Location: 1000 Leepak Ave. Palmer, Alaska

Hosts: The Dummann Family

The Dummann Family will be hosting the Annual Shots for Sean!  Sean Dummann suffers from MPS IIIA, Sanfilippo syndrome.  All proceeds will benefit the National MPS Society to support the Medical Research Programs.  Please visit the website: shotsforsean.golfregistrations.com to make a donation or to register for this exciting event!  Maps and fliers are available.  Shots for Sean has raised over $39,000.  The event is currently seeking sponsorship, don't miss this opportunity.

A Wish for Evan 

Charity Dinner & Softball Tournament

August 6, 7, & 8th in Hewitt, Texas

The Abel Family will be hosting a Spaghetti Charity dinner and Weekend Softball Tournament to raise funds for research.  A Silent Auction will accompany the dinner.  More information will be posted soon.  Please see the attached flier for Evan's story.  To make a direct contact with Evan's Family, please email Kristi Abel at This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Event Flyer

 Mini Kickers Soccer Camp 

Date: July, 2010     

Location: Alexandria, Virginia

Hosts: Nicole Canzoneri

In Honor of:  Annabella Bozarth

We have some fantastic news to spread and I am starting with all of my frends and family.  This summer Lee-Mount Vernon Sports Club is hosting a mini kickers soccer camp fundraiser for Morquio Syndrome Research.  The camp is geared towards 4 year olds and will be in Alexandria, VA this summer.  For details on registration visit: LMVSC Registration.

Nicole Canzoneri is the soccer camp direct and our very dear friend.  She has planned this mini kickers fundraiser from beginning to end and now we just need to get the word out.  All proceeds of the fundraiser will go to the National MPS Society earmarked for Morquio Syndrome Research in honor of Annabelle.  We hope to reach maximum capacity for a final big donation check!!

Nicole Canzoneri is the soccer camp director and our very dear friend.  She has planned this mini kickers fundraiser from beginning to end and now we just need to get the word out.  All proceeds of the fundraiser will go to the National MPS Society earmarked for Morquio Syndrome Research in honor of Annabelle.  We hope to reach maximum capacity for a final big donation check!!!
 
As I know, many of you are not 4 years old...okay...all of you are not!!! However, you may have a potential mini kicker in your home or a friend, neighbor, or family member living in Alexandria that would love to burn some 4-year-old energy while learning to play soccer.  AND they will be raising money for a good cause at the same time.

EVENT FLYER

Riley's 2nd Annual Toss for MPS 

Date: Saturday - August 28, 2010     

Location: Marysville, OH

Hosts: Erin Ricketts and the Muller Family

In Honor of:  Riley Muller

 The Muller Family will be hosting the famous Corn Hole Tournament to raise funds for the National MPS Society and MPS II research.  More information will be posted soon.  To get more information on this event please contact Erin Ricketts at This e-mail address is being protected from spambots. You need JavaScript enabled to view it .