Giving Impact & Donor Stories

MPS Fundraising Video, Developing Our Future

Why Did We Give a Planned Gift?  Hear from our Donors….

Everyone at the National MPS Society considers it an honor to recognize friends who have given estate gifts or creative gifts today. Their legacies will continue to impact Society research and family support programs now and for future generations. These are true stories of donors that have decided to make a large impact and difference.

“I was so excited when my first granddaughter was born. I was looking forward to having a little girl to play with and take shopping to buy pretty dresses and beautiful dolls. After having two sons and two grandsons, I could now buy something other than planes, trains, and automobiles. At two-years-old, Mackenzie was diagnosed with MPS IIIA. I have designated in my will that each of my grandchildren will receive a sum of money. Mackenzie’s share will go to the National MPS Society in support of research.  Mackenzie has given me many gifts; this in my gift back to her.”
Becky, Newport News, Virginia
Grandmother to Mackenzie (MPS-IIIA)

“Our goal in creating an endowment was to provide a gift that would help ensure the longevity and stability of the National MPS Society so it can continue to support and advocate for patients and their families. The Society provides essential functions that help patients get treatments as well as support them in their daily lives. Even with treatments, the needs are not all satisfied and there is always more the Society must do. They advocated on a national level, fundraise to support student fellowships and research projects, raise awareness, and support individuals and families with both emotional and financial assistance.”
Emil Kakkis, MD PhD, Rare Disease Specialist and Jenny Soriano


“I have been a member of the National MPS Society for 13 years and made the decision to include the Society in my estate planning to recognize its important efforts and contributions and to honor my brother who had MPS II.”
Christa, New York, New York
Sister of Ulrich who had MPS II, 1919 – 1964