Current Walk/Runs and Fundraisers

MPS Holiday Caring & Sharing

November 19th, 2016

River Oaks, TXsharing-photo

Join us for a warm and wonderful evening with Steve and Amy Holland’s family and other MPS families benefiting MPS research.  This evening will include donations for holiday ornaments featuring original artwork by Madison and Laynie Holland.  There will also be a combination silent and live auction for premium holiday desserts.  Complimentary soups and sandwiches from Panera Bread will be provided by Cook Children’s Home Health.

Click here to donate and learn more about the event. 


Run for Molly

Ongoing fundraiser

RunforMollyMolly was born with Hurler Syndrome. One out of 100,000 children are affected with Hurler Syndrome. She has had a bone marrow transplant, hip reconstruction, and over 17 surgeries since she was 6 months old. Her parents were told that she would not live to see her 10th birthday. Molly just turned 15 years old! I will be running a half marathon in Molly’s honor! All of the money raised goes toward research for a cure for Hurler Syndrome! Let’s make Molly proud! Donate! Donate! Donate!

Click here for more information and to donate.


Million Dollar Bike Ride

MDBR official logo

May 7th, 2016

Philadelphia, PA

On May 7th TEAM MPS will participate in the Million Dollar Bike Ride for Rare Diseases hosted by Penn Medicine Orphan Disease Research. Every dollar raised by TEAM MPS will be doubled, up to $50,000!

Please join us in this important endeavor by donating here, and if possible, by joining in the ride at the event in Philadelphia.


National Run Napa Valley – MPS Race for the Cure

May 15th, 2016

Napa, CA

We are excited to share the news that National MPS Society Development DirectoLOGO Final 2016 Runr Terri Klein is working with Race Directors John Pagliero and Stephanee Adams on the first National Walk/Run of 2016! The Walk/Run will be located in Napa, CA area on International MPS Awareness Day – May 15th!

Click here to learn more and register.


Hope for Hurlon

June 4th, 2016

Midwest City, OK


We will be hosting a 5K Run/Walk for a cure event at the Midwest City’s Joe B. Barnes Regional Park. All proceeds will benefit Sanfilippo Syndrome research and our Family Support Programs.

Click here to see the flyer, and click here to register.


6th Annual Concert for a Cure and 2nd Annual Northeast MPS “Remembering” Picnicconcert for a cure

Picnic – June 4th from 12:00pm – 5:00pm. Check out the flyer here! The picnic is from 12:00pm – 5:00pm.


Location: Sellersville Firegrove, 2 N Main St, Sellersville, PA 18960

Date: June 5th 2016

Time: 11:00am-10:00pm EST

Tickets available for purchase at venue:

• $20.00 per adult

• $100.00 per group of six

• Individuals with MPS get in free

• Children 11 and under get in free


Columbus Crush – National MPS Society 5K Run/Walk

August 6, 2016LOGO Final 2016 Run

Columbus, OH

The National MPS Society will be hosting a 5K Run and 1M Memorial Walk in conjunction with our 30th Annual Family Conference. All proceeds will benefit the National MPS Society programs.

Click here to learn more and register.


Benny Strong 5K

benny strong 5k 2016

August 13, 2016

Brazil, IN

We will be hosting a 5K walk/run at Forest Park on August 13th with an 8:00am start time.

Click here to learn more and register.


Lynn’s 7th Annual Fall Season cabi Clothing

September 18, 2016

Long Beach, CA

It’s your chance to have some fun with fashion and friends and food and a raffle, all while raising money for a cause dear to the Hopkins’ Family heart ~ the National MPS Society!

Sales commission from the clothing show will be donated to the National MPS Society! We want to find a cure for MPS and work to improve Michelle’s life and other loved ones affected by MPS. Watch the Fall 2016 sneak peek here!

Hosted by: Lynn Hopkins
Sunday, September 18, 2016 / 1:00 pm


Do It Fore Dan – Golf Tournament

October 7, 2016

Landenberg, PA

Please join our family as we host the 5th Annual Do It ‘Fore’ Dan Golf Tournament to raise money for medical research seeking cures and treatments for the devastating disease, MPS (Mucopolysaccharidoses). This condition has affected many lives in the tri-state area and around the United States and sadly has taken the lives of many

do it for dan smalleras well. There are seven different types of MPS and our son Dan, had MPS type II or Hunter Syndrome. Dan fought an incredible battle against MPS for a little over 19 years but lost the fight this past January. Although Dan is no longer with us, it is our hope that we continue to raise both awareness and funds for this terrible progressive and degenerative disease. The tournament will be held at Chisel Creek Golf Course in Landenberg, Pennsylvania on October 7, 2016 with a 12:30pm shotgun start.

Click here to learn more and register.


4th Annual Cross Creek Charity Golf Tournament

October 9, 2016

Atlanta, GAcross creek golf tournament

Join us for great prizes, lots of fun, and GOLF! All proceeds benefit the National MPS Society.

Click here to learn more and register.


 Post Office Cafe 25th Annual 5K Run & 1K Fun Run

post office cafe 2016

October 15, 2016

Babylon, NY

Run for Fun…Race for a Cause! Please join us for the Post Office Cafe’s 25th Annual 5k Run & 1K Fun Run!

The event is in honor of Casey Lessing and in memory of Mark Lessing.

Registration begins 8am. The 1K starts at 9:30am. The 5K starts at 10am.

Click here to learn more and register.