Current Walk/Runs and Fundraisers


Million Dollar Bike Ride

MDBR official logo

May 20th, 2017

Philadelphia, PA

On May 20th TEAM MPS will participate in the Million Dollar Bike Ride for Rare Diseases hosted by Penn Medicine Orphan Disease Research.

Every dollar raised by TEAM MPS will be doubled, up to $50,000!

Please join us in this important endeavor by donating here, and if possible, by joining in the ride at the event in Philadelphia.


National Run Napa Valley – MPS Race for the Cure

May 21st, 2017

We are excited to share the news that National MPS Society Development Director Terri Klein is working with Race Directors John Pagliero and Stephanee Adams on the first National Walk/Run of 2017! The Walk/Run will be located in Napa, CA area – May 21st!

Click here to learn more and for TEAM Building Registration.

                                            Click here for Regular Registration (local, individual                                                    participants).  


Minneapolis Madness – National MPS Society 

5K  Run/Walk

August 5th, 2017

Minneapolis, MN

The National MPS Society will be hosting a 5K Run and 1M Memorial Walk in conjunction with our 31st Annual Family Conference. All proceeds will benefit the National MPS Society programs.

Click here to learn more and register.


5th Annual Cross Creek Charity Golf Tournament

October 1, 2017

Cross Creek Golf Club

1221 Cross Creek Pkwy

Atlanta, GA 30327cross creek golf tournament

Join us for great prizes, lots of fun, and GOLF! All proceeds benefit the National MPS Society.

Registration coming soon!


Benny Strong 5K

benny strong 5k 2016

Brazil, IN

We will be hosting a 5K walk/run at Forest Park on August 13th with an 8:00am start time.

Click here to learn more and register.


Lynn’s 7th Annual Fall Season cabi Clothing

Long Beach, CA

It’s your chance to have some fun with fashion and friends and food and a raffle, all while raising money for a cause dear to the Hopkins’ Family heart ~ the National MPS Society!

Sales commission from the clothing show will be donated to the National MPS Society! We want to find a cure for MPS and work to improve Michelle’s life and other loved ones affected by MPS.

Hosted by: Lynn Hopkins


Do It Fore Dan – Golf Tournament

Landenberg, PA

Please join our family as we host the 5th Annual Do It ‘Fore’ Dan Golf Tournament to raise money for medical research seeking cures and treatments for the devastating disease, MPS (Mucopolysaccharidoses). This condition has affected many lives in the tri-state area and around the United States and sadly has taken the lives of many

do it for dan smalleras well. There are seven different types of MPS and our son Dan, had MPS type II or Hunter Syndrome. Dan fought an incredible battle against MPS for a little over 19 years but lost the fight this past January. Although Dan is no longer with us, it is our hope that we continue to raise both awareness and funds for this terrible progressive and degenerative disease. The tournament will be held at Chisel Creek Golf Course in Landenberg, Pennsylvania.


 Post Office Cafe 25th Annual 5K Run & 1K Fun Run

post office cafe 2016

Babylon, NY

Run for Fun…Race for a Cause! Please join us for the Post Office Cafe’s 25th Annual 5k Run & 1K Fun Run!

The event is in honor of Casey Lessing and in memory of Mark Lessing.

Registration begins 8am. The 1K starts at 9:30am. The 5K starts at 10am.


MPS Holiday Caring & Sharing

River Oaks, TXsharing-photo

Join us for a warm and wonderful evening with Steve and Amy Holland’s family and other MPS families benefiting MPS research.  This evening will include donations for holiday ornaments featuring original artwork by Madison and Laynie Holland.  There will also be a combination silent and live auction for premium holiday desserts.  Complimentary soups and sandwiches from Panera Bread will be provided by Cook Children’s Home Health.

Click here to donate and learn more about the event. 


Run for Molly

Ongoing fundraiser

RunforMollyMolly was born with Hurler Syndrome. One out of 100,000 children are affected with Hurler Syndrome. She has had a bone marrow transplant, hip reconstruction, and over 17 surgeries since she was 6 months old. Her parents were told that she would not live to see her 10th birthday. Molly just turned 15 years old! I will be running a half marathon in Molly’s honor! All of the money raised goes toward research for a cure for Hurler Syndrome! Let’s make Molly proud! Donate! Donate! Donate!

Click here for more information and to donate.