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- Society’s 2014 Research Grants Announced
- Information about new resources for families, specifically caregivers
- Don’t let Congress repeal incentives for rare disease drug development!
- First Treatment for MPS IVA Approved
- Girl, 2, to be saved by bone marrow transplant from 10-month-old sibling - Daily Mail
- 5k Run/Walk in Belle Chasse for Aspartylglucosaminuria (AGU)
- Feeling Isolated and Infuriated About Insurance? Attend our “Navigating Insurance Issues” Webinar!
- Undiagnosed: Medical Refugees: San Diego Event and Silent Auction