Courage Pages

Welcome to Courage Pages!  Creating a Courage Page provides an opportunity for your Family to share your unique story, including pictures, to assist you in raising awareness for MPS and related diseases. This page can be for in Honor or in Memory of someone with MPS or a related disease and can be used for Fundraising. What is important is that you decide!

Our hope is that through Courage Pages, you are enabled to share your rare disease story with loved ones, friends, colleagues, physicians, legislators and anyone that wants to learn more about MPS and related diseases. Your story can include multiple photos and be updated as often by you as often as you like!

This is a terrific platform for raising funds and to tie into a fundraising event, you decide! Families have raised over $100,000 through Courage Pages and allocated the funds as they wanted – whether this is for syndrome specific research, family support or legislative efforts.

Ready to get started?

First begin by registering for your new page!  Register now.
We have created these detailed directions to help you with registering, creating and editing your page. We will do our very best to keep directions updated during software changes.

Already have an account? Log in here.

Want to visit other Courage Pages?

Please scroll through the list of Families and Friends that have a Courage Page below and click the link to access their page.  These can be viewed in alphabetical order by clicking on the arrows to the right of the Child’s Name header.

If you are interested in building your own webpage for your loved one it is easy!  If you prefer for the Society to build the page for you, we have an online application you can fill out. If you need a form mailed to you please contact Terri Klein at or call 919.806.0101.

Image Child's NameSyndrome
Aaron AthyAthy, AaronMPS I
AnnabelleBozarthblue_smlBozarth, AnnabelleMPS IVA
AlanCharestHatBlueShirt_smlCharest, AlanMPS IIIB
AllisonKirchFloweredPink_smlKirch, AllisonMPS IIIA
AlyVonHandorfBike_smlVon Handorf, AlysonMPS IIIA
JackAlexNickCherrstromoutsidesmlCherrstrom, Alex and Nick MPS II
AnaleePerezSmileFlowerssmlPerez, AnaleeML II
AshleyAllenStandOutsmlAllen, AshleyMPS I
BethKarasHeadshotKaras, BethML III - Sister
CarterKanneyCrabShirtsmlKanney, Carter MPS II
CTippettfootball_139x150.png Tippett, CooperMPS IVA
Belisle, RyderMPS III
ChristianYardStepsYard, ChristianMPS II
DannyMillerFamilyFireplace_smlMiller, DannyMPS II
EvanAbelFamily_smlAbel, EvanMPS IIIC
EddieKFootballGame2011_smlKimminau, EddieMPS IVA
MackenzieandIsabellaflowers_smlHardesty, Mackenzie & IsabellaMPS VI
HollandHoliday_smlHolland Family, Steve MPS I
HudsonRoman, HudsonMPS II
HunterBeambookbagsmlBeam, HunterMPS II
Caleb MMichalik, CalebMPS II
JacksonDunnKrausswindowFamily_smlDunn-Kraus, JacksonMPS II
JenniferKleinButterflyface_smlKlein, JenniferML III
JackToddSoccershirt_smlTodd, JackMPS II
Guajardo, KarinaMPS IIIA
Bridget Joyce for Kathy JoyceJoyce, KathleenMPS I
KaliGegenheimerHat_smlGegenheimer, KaliMPS I
KraigKrisChel_smlKlenke, KraigMPS II
MThompson_sml-150x142Thompson, MadisonML III
MichaelCampbellJersey_smlCampbell, MichaelMPS II
MJMCourage_Tree_wings_smlMongan, MauraMPS I
MichaelWhitaker-RussellPurpleshirt_smlWhitaker-Russell, MichaelMPS II
RaymondPinchakwhiteshirt_smlPinchak, RaymondMPS II
RoyZeighamiAward_smlZeighami, RoyMPS IIIA
SamCaswellGradRobe_smlCaswell, SamMPS I
Gibson, ShaneMPS IIIA
ShaneMcGoeyHelmet_smlMcGoey, ShaneMPS II - Friend
ScottyWhitecottonBlueshirt_smlWhitecotton, ScottyMPS II
TrinityWalkerLove_smlWalker, TrinityMPS IIIA
MPS_tagWHITE_PBrown, Tyson MPS I
Donahue, JuliaMPS IVA
Berning, ColinMPS III A
Yurkins,EmilyMPS III A
Humphrey, FionaMPS III A
Hughes, AnalynnMPS I
Swanson, KatieMPS VI
Willmann, Antonio
Hopkins, MichelleMPS I
Sanchez, ChristopherMPS IVA
Patton, XavierMPS II
RileyMullerMuller, RileyMPS II