Beginning your journey with MPS or ML:
Where to begin
Learn more about the specific MPS syndromes by visiting the MPS Library and downloading a copy of our syndrome booklets and fact sheets. Visit clinicaltrials.gov for the latest in clinical trials and natural history studies.
Schedule a home visit with Family Support Lead Coreen Gray who can help guide you through a new diagnosis and learn what to expect.
Connect with other families who have a child with the same syndrome. The National MPS Society office can help make this happen. Other parents are the best resource available. Contact us for details.