2017 Annual Family Conference – registration now open!
The National MPS Society is pleased to announce that the 2017 Annual Family Conference will be held in Minneapolis, MN at Hilton Minneapolis on August 3rd – 5th. Registration is …
Napa Valley Walk/Run
5K and Memorial Walk to benefit those affected by MPS and ML
DATE: May 21 – Sunday TIME: 8:30 am Registration 10:00 am – 5K Run 10:15 am – 1 Mile Walk Veterans Home of California 100 California Drive Yountville, CA 94599 …
New board members elected
2017 board of directors' election ushers in two new members, four incumbents
The results of the 2017 board of directors election are in! We are pleased to welcome some new faces and are happy to see some familiar ones, as well. Thank …
2015 Annual Report
National MPS Society releases 2015 annual report
We recently released our 2015 annual report, featuring the National MPS Society’s highlights and accomplishments for 2015. Copies were mailed to members and donors across the country. If you didn’t …
MPS organizations and PatientCrossroads have formed the first pan-mucopolysaccharidosis online patient registry
DURHAM, N.C. — With the click of a mouse, patients with a rare disease will now be one step closer to cures for mucopolysaccharidosis and mucolipidosis. The National MPS Society, …
Teen's wish is to raise awareness for MPS
Like any teenage girl, Alli Williams, 17, has a wish. While being a bit taller is on her list, she is truly dedicated to one singular goal — raising awareness …
Mucopolysaccharidoses (MPS) and related diseases are genetic lysosomal storage diseases (LSD) caused by the body's inability to produce specific enzymes. Normally, the body uses enzymes to break down and recycle materials in cells. In individuals with MPS and related diseases, the missing or insufficient enzyme prevents the proper recycling process, resulting in the storage of materials in virtually every cell of the body.